Pain Management Programme by videoconference information sheet

Pain management programme by video call

Your consultant and nurse think that the Addenbrooke’s pain management programme may help you cope with your pain. This leaflet aims to give you enough information to help you decide whether you are interested in taking part.

We are offering a video conferencing version of the pain management programme. This means you can take part in the three week programme from your own home.

Our mission for patients participating in the pain management programme remains the same: To empower patients to gain confidence, change their perspective on pain for the better and improve their participation in life.

Who is the programme for?

The programme is for those who have chronic pain, which is pain lasting more than six months. To take part you will already have been under the care of the pain clinic, you will have been reviewed by a consultant and also have had various appointments with the clinic nurses.

The programme is recommended because there is no cure for chronic pain. It sets out to give people the knowledge and tools for their own long-term management of pain.

Many people considering a programme say pain has taken over their lives. The programme is designed to help people get their lives back; achieve their goals, get fit, lift their mood and see improvements in their relationships. If you want to achieve these things, then the pain management programme may be for you. The online version of the pain management programme shares these aims.

What does the programme involve?

You will receive an invitation by email to enable you to join the sessions. The sessions are provided via a video conferencing platform. The programme runs from Mondays to Thursdays for three weeks. There is a total of twelve days. You will be part of a group of around eight people. Each group is reviewed after one month, six months and a year. You are expected to take part in all sessions of the programme and reviews. If you cannot attend one of your group’s review days, you will be offered a review with a different group.

You will need access to a laptop/computer/tablet or phone with camera and speaker/headset. Most people find a computer/laptop/tablet works better than a phone because the larger screen helps them to see better.

You will need somewhere quiet to sit and listen, and to join in the conversation in a private area. We ask that all patients ensure they are not disturbed and no one is listening in to the group’s conversations for confidentiality reasons.

The programme involves a big commitment from you. We also suggest you avoid making significant plans for the Fridays or weekends during the programme, so you can make the most of the programme.

Who runs the programme?

Psychologists lead a team of nurses, physiotherapists and occupational therapists. We do not see pain as just a physical problem. We believe it involves your thoughts, your mood, your activities and your relationships, amongst other things. That is why a range of different staff is involved, in order to help you build coping strategies in different areas of your life.

We use a set of psychology ideas called cognitive behaviour therapy. These ideas help people think differently about their problems and evolve ways to cope with them. The end result is often an improvement in mood.

The responsibilities of the clinical team on the programme include:

• providing evidence-based approaches for self-management of chronic pain
• treating you with respect and kindness
• ensuring a supportive environment for you to try out new skills

The responsibilities of the participants on the programme include:

• being open-minded
• committing to attending all sessions
• participating in the activities and discussions
• trying out the strategies and skills in your everyday life

What would I do on a programme?

A typical day on the programme could involve:

• 09:30 Review of action plan for home practice (whole team session).
• 09:45 Feedback from ‘thought challenge’ (psychology-led, whole team session).
• 11:00 Break.
• 11:30 Pacing (occupational therapy session).
• 12:30 Lunch.
• 13:30 Relaxation (self-directed relaxation).
• 14:00 Trying out movement (physiotherapy session).
• 15:00 Finish.

The thought challenge is an innovative part of this programme. It is a practical that you plan for yourself, allowing you and the team to collaborate to gather information to assess strategies for self-management of chronic pain The programme includes a doctor’s question and answer session. This can be very helpful for understanding pain, to discuss pain management and review any questions you may have. We will invite you to send your questions before the session.

What happens next?

A physiotherapist, clinical psychologist and occupational therapist will assess you either in person or by telephone. The assessment will last about an hour and a half. They will ask you questions about your pain problem and how it affects your day-to-day activities mentally, physically and emotionally. If they offer you a place on the programme you will have the option to take part in the video conference pain management programme or the face to face pain management programme when this is available. Alternatively, the team may suggest a different plan, such as a referral to another service. If you are not interested in taking part in the programme, please inform the clinic staff.

You will continue to be offered group reviews until the programme’s one-year review when you will be discharged because you will have been taught to manage your pain for yourself, with support from your GP.

Benefits

Participants on previous programmes have given the following feedback:

• “I am able to have a more proactive role ... I am happy again and look forward to things."
• “I finally understand what’s going on with my pain.”
• “I’m doing more of what I want to do.”
• “I know the right kind of exercise.”
• “I’m thinking in a more balanced way.”
• “I can do the day to day things I need to do around the house.”
• “I’ve got a plan for the months ahead.”

Risks

There are no known long-term risks to using pain management strategies. Taking part in the programme may lead to increased pain in the short term; this is a normal process as your body gets used to more exercise and the routine of the programme. Sitting in chairs for some of the tasks can cause temporary discomfort. You may also feel upset with the content of the programme at times, as some of the things we talk about may be emotionally challenging. You will be supported by the team in dealing with these difficulties.

Most participants say these problems are short lived and resolve over the three weeks. If you do experience more pain or distress during the programme, it is important that you tell us so that we can work together to help you cope.

Alternatives

Alternatives to the pain management programme may include individual clinical psychology, physiotherapy or occupational therapy sessions through the pain clinic. If you would like to consider this, please discuss it with the pain clinic team.

Privacy and dignity

We are committed to treating all patients with privacy and dignity. The confidential nature of the group sessions is discussed at the start of the programme. Conversations with staff are confidential unless it is thought that there is a risk to your own or another person’s safety, in this case we would consult with you. The department of pain medicine is compliant with Trust policies for patient confidentiality. If you have any concerns at any stage, please speak to a member of staff in the pain clinic or to your GP.

Further information contact details

Should you require further information please contact:
The Pain Management Programme Administrator, Department of Pain Medicine,
Box 215, Addenbrooke’s Hospital, Hills Road, Cambridge, CB2 0QQ.

Telephone number: 01223 216993.