Moving to adult respiratory neuromuscular care from paediatric respiratory services

Transitioning from paediatric to adult care

As you are getting older, this leaflet is to help you start to think about moving (what we call “transitioning”) to a different service to provide your care.

Don’t worry; changing to adult care means you can receive more appropriate services now you are moving into adolescence. The process of transition should start between 15 to 16 years old. We would aim to invite you to a transition clinic which is often the first of a series of discussions about making plans for the future and an opportunity to meet with the adult respiratory consultant who will be taking over your respiratory care.

Do we have to move to a different service and why?

All children have to start transition when they are between 15 to 16 years old. As you young person is no longer regarded a child, and a children’s clinic is no longer a suitable environment for them to be seen in. As they get older their medical requirements will change and cannot be catered for in a children’s clinic. It also gives an opportunity for you to be seen within an age-appropriate environment and facilities with staff who are more equipped to deal with your needs.

Where will I move to, and do I have a choice?

Yes, the choice is up to you; it depends on where you live. Usually people are referred to the adult respiratory clinic at Papworth hospital (opens in a new tab).

How does it happen?

We will start to talk to you about moving to adult services when you reach 15 years of age. You will be booked into a transition clinic. At your transition clinic appointment, you will have an opportunity to meet the adult team and get to know them. We will let you know when your last appointment with us will be. We will send your transition paperwork to the relevant team and once you have an appointment with them there will be no need to attend any further appointments with us.

What happens I am admitted to an adult ward? Can someone stay with me stay?

We know that usually adult wards do not have facilities to allow people to stay, but exceptions are often made for young people with additional care needs to accommodate a parent or carer.

Other things to consider

Who will be my primary contact in adult services?

It will be increasingly important that your GP is involved as they are experts in local services and referral pathways. They play a key role in linking with other adult services and provide valuable support.

PIP

Personal Independence Payment (PIP) replaces DLA (Disability Living allowance) at 16 years; it is designed to help meet some of the extra costs you may have because of your young person’s long term health condition or disability for more information visit UK Gov - Personal Independence Payment (PIP) Information (opens in a new tab).