CUH TTP service is part of the CUH non-malignant haematology service. It offers comprehensive and expert advice in the management and follow up of TTP.
The team consists of consultant haematologists, haematology registrars, medical trainees, clinical nurse specialists, physiotherapists and a clinical psychologist.
The service offers a full specialist service to patients including access to our onsite automated plasma exchange service, phlebotomy, haematology day unit and specialist haemostasis lab.
The aim of the service is to enable patients with TTP to live as normal a life as possible and help to prevent TTP relapse by ensuring optimal treatment of their medical, physical and psychosocial needs.
Our services include:
- Emergency treatment of TTP
- Individualised acute care management plans and follow up care
- Regular assessments, reviews and routine blood tests including ADAMTS13
- Physiotherapy
- Dedicated specialist adult nurses
- Genetic testing and counselling
- Psychological support and counselling
- Information and advice for health care professionals and carers
- Participation in clinical research
- Specialist haemostasis laboratory
Thrombotic Thrombocytopenic Purpura (TTP) is a rare blood disorder that affects between 6 to 10 people in every million. It is more common in women than men although it can affect people of all ages. The average age of diagnosis is 40 years.
People with TTP have a deficiency of the enzyme called ADAMTS13 that should break down the von Willebrand Factor, which, with platelets, normally prevents bleeding. This enzyme stops working properly and the platelets become sticky and form blood clots in small vessels that can affect any organ.
TTP episodes are serious and life-threatening. It is considered a medical emergency and it is estimated that 10-20% of acute patients die from TTP, despite currently available treatments. TTP is a lifelong condition, as after their initial diagnosis many patients will experience further episodes of TTP (called relapses).
Clinics
Our clinic aims to monitor patients during treatment and monitor their progress. We offer specialist support and education for patients, families and their careers.
The consultant led clinic consultation and annual reviews operate every first and third Friday of the month.
The nurse led clinics run every Thursday and Friday 08:00 to 17:00
The team is available Monday to Friday, 8:00 - 17:00 for specialist advice, genetic counselling, screening, support, education, health promotion and urgent review.
To change appointment
If you cannot attend your clinic appointment, please call us in advance on 01223 274652 so we can offer the appointment to another patient.