ERBoN is the Eastern Rare Bone Disease Network.
We are a multidisciplinary group of colleagues from across specialties involved in providing clinical services for people with rare bone diseases. Our expertise is drawn from rheumatologists, endocrinologists, geneticists, clinical chemists, radiologists and paediatricians, all of whom have a role in helping people with rare bone disorders.
The network is led by Dr Gavin Clunie (Consultant Metabolic Bone Physician) in Cambridge and by Professor Jeremy Turner (Consultant in Endocrinology) in Norwich.
We aim to provide multidisciplinary care in an expert environment in which to people and their local doctors and specialists in the medical areas of: complex osteoporosis, osteogenesis imperfecta, skeletal dysplasias, and other hereditary, genetic and rare conditions affecting the skeleton. We provide the service to colleagues across the Eastern Region.
ERBoN is part of the NHSE Adult Rare Bone Disease Network (opens in a new tab). We meet on a monthly basis in an MDT format for case-based discussions, we run an annual in-person educational and training meeting, publish a newsletter regularly and provide an informal network of clinical advice to other colleagues in regard of skeletal disease management.
Meet the team
Dr Gavin Clunie MD FRCP - Consultant rheumatologist and metabolic bone physician and joint clinical lead ERBoN (Cambridge)
Professor Jeremy Turner D.Phil FRCP - Consultant endocrinologist, department of diabetes and endocrinology, NNUH
Honorary professor, Norwich Medical School
Clinical director, NIHR CRN East of England
Joint clinical lead ERBoN (Norfolk and Norwich)
Ken Poole FRCP PhD - University Professor of Metabolic Bone Disease
Dr Ruth Armstrong - Lead for Paediatric and Colorectal Genetics.
Lead for Skeletal Dysplasia and Disorders of Sexual Differentiation
EGMSA Lead for Lynch Syndrome
Consultant in clinical genetics
Jolanta Mil - ERBoN specialist nurse
Louise Clare - ERBoN network coordinator
Paget's Association
We are a Paget’s Association Centre of Excellence. The Paget's website (opens in a new tab) provides patients with lots of information on Paget’s disease for anyone newly diagnosed and links to support resources and booklets which we hope patients will find helpful.
MDT
Our ERBoN MDT runs on the second Monday of every month over teams. Please contact ERBoN Network Coordinator, Louise Clare, via email or telephone (01223 217716) if you wish to submit a case for discussion.
We do ask that you are available to present your case at the meeting.
