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Chronic Pain (Paediatrics)

Children's services A-Z

The chronic pain service at Addenbrooke’s Hospital is delivered by a team of healthcare professionals and provides assessment, treatment and support for children, young people and their families with recurrent or long-standing (chronic) pain problems.

About us

The regional paediatric chronic pain service was established in 2019 to help children and young people with complex and persistent pain difficulties (pain usually lasting longer than 3 months). This specialist pain clinic uses the biopsychosocial approach to pain management. Children and young people are assessed by our multidisciplinary team and an individual pain management plan is agreed with the child and the family, including promotion of self-guided management strategies.

We aim to:

  • Support you to manage your pain better
  • Support you to feel more in control
  • Support you to improve your level of function
  • Support you to understand how your thoughts, feelings and emotions can impact your pain

Conditions we treat

Our chronic pain clinic provides a multidisciplinary assessment for children and young people who have persistent pain (usually for longer than 3 months) which is unresponsive to standard treatments / analgesics. The only exceptions to this are:

  • Complex Regional Pain syndrome (CRPS) which should be referred promptly to allow early treatment
  • Cancer pain / life limiting condition - e.g. for consideration of an interventional block to support oncology / palliative care (unlikely to need MDT triage/clinic)

Referral information

All investigations aimed at identifying a treatable pathology that may be a source of the pain symptoms must have been completed prior to referral, and the results of these investigations fed back, with opportunity for discussion. Referrals will only be accepted directly from a hospital consultant or community consultant paediatrician who have assessed and managed the pain to a secondary care level.

Information for patients

The initial appointment may last up to 1 hour and 15 minutes so please allow for this when planning your day. Currently due to COVID restrictions we may only allow one parent or primary carer to accompany you at present.

Prior to meeting you at your first appointment the team will provide you with some questionnaires that enable us to assess how pain is effecting you and your everyday life.

During the initial appointment you will meet members of the team who will undertake a comprehensive assessment. The team will aim to gain a clear understanding of your pain and the problems you are facing in everyday life. This may include a physical examination. We recommend you attend wearing shorts and a vest top under your clothing or you can easily change into these so that you feel comfortable and can be examined properly. Once the initial assessment is complete you will be asked to wait in the waiting area for a short time whilst the professionals discuss appropriate management options. You will then be invited back into the clinic room so that we can discuss this together and agree an individual pain management plan.

Pain is a complex problem that is influenced by many factors. Children and young people with recurrent or chronic pain problems are known to benefit from a combination of psychological approaches, physical therapy, occupational therapy and sometimes medication. Meeting the whole team at your first appointment avoids multiple appointments and allows the team to work well together in helping with your pain. It also means that help and advice will be coordinated between members of the team. We recognise that living with chronic pain can be stressful and distressing therefore we aim to help with both the causes and the on-going effects of pain.

Information for children and Families attending the Clinic

Meet the team

Dr Paul Rolfe - Consultant in Pain Medicine and Anaesthesia

Dr Peter Bale - Consultant in Rheumatology and Pain Medicine

Dr Jayne MacMahon - Consultant in Rheumatology and Pain Medicine

Dr Gabie Dobson - Consultant in Rheumatology and Pain Medicine

Dr Jade Bamford - Clinical Psychologist

Meryl Gunstone - Paediatric Pain Clinical Nurse Specialist

Shona Rookes - Paediatric Pain Clinical Nurse Specialist

Brooke Mara - Physiotherapist

Katie McLernon - Physiotherapist

Stella Parry - Occupational Therapist

Tracy Cardew - Lead Medical Secretary

Sarah Martin - Medical Secretary

Online Resources

Online Resources for Chronic Pain

tamethebeast.org

Information/animation about how to understand and manage chronic or persistent pain, by Lorimer Mosely and David Moen

  • Real stories
  • List of resources
  • Question and Answer section
  • Podcast available

LiveWellWithPain.co.uk

  • Videos and leaflets about chronic pain
  • Explaining pain, Sleep problems, 10 footsteps to living well with pain, Your journey with pain, Information about opioids
  • Resources for professionals including videos

Retrainpain.org

  • 8 visual explanations of Pain
  1. Why do we feel pain?
  2. What causes persistent pain?
  3. A simple metaphor
  4. The elephant in the room
  5. Strange pain and magic in the brain
  • Retrain Pain Art Gallery
  • Facebook link to Retrain Pain

Pain Bytes

Young People’s section of the Pain Management Network website with 7 episodes around understanding and managing pain

Explain pain

5 minute animation/video explaining ideas about pain management

Mind body connection at Wildwood High

7 minute video explaining the mind body connection

MoodJuice

Self help website for older teens/adults on managing emotional problems, including pain

Understanding Persistent Pain for those who don’t have it

Online Resources for relaxation, mindfulness and emotional wellbeing

APPs:

Calm Zone

Calm

Free website and mobile app with guided meditation and relaxation exercises aimed at teenagers.

Headspace

Mindfulness exercises that help with difficult feelings

Mindshift

A range of CBT-based exercises for anxiety, including relaxation, visualisation, and mindfulness exercises

Flowy App

A game which incorporates breathing exercises

Smiling Mind App

Mindfulness exercises for different age groups

Breathe App

Very simple app for breathing

Worry Time App

For worry scheduling

Breathr

Mindfulness app for youth, free for Apple and Android mobile devices

Websites

www.Kooth.com

A website designed to improve access to mental health support for young people. Free, confidential service providing support online for people aged 11 - 19.

www.keep-your-head.com

A local children and young people’s mental health website that signposts people to reliable sources of mental health information. The site is designed for children and young people, parents/carers and professionals.

https://youngminds.org.uk/

Resources, information and events for young people about how to keep well.